30 Mag Rare Partners
“…Not an alternative to for-profit-organizations but one more opportunity…”
Rare Partners is a non-profit organization supporting the development of innovative therapies and diagnostic tools for rare diseases.
In order to translate lab results into drugs and therapies, discovery research needs to be integrated with methods and processes which are typical of pharmaceutical development.
Rare Partners facilitates this crucial step.
The organization provides the competency of professionals with a long-standing expertise in the pharmaceutical field to support nonprofit-funded academic research.
ScienceCompass is collaborating with RarePartners on a project dedicated to Usher syndrome, a genetic disease causing severe vision and hearing impairment.
ScienceCompass contributes to the project through the following activities:
- scenario analyses on the state of the art of national and international research on Usher syndrome;
- mapping of the funding entities in the field;
- feasibility studies to evaluate the creation of collaborations or joint actions on Usher syndrome;
- planning and activation of funding initiatives for research on the disease.